Bi-monthly news and views from the connector hub and collective voice of rare disorders in New Zealand.

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Oct 31, 2019, 11:05 AM
Rare Disorders NZ: October update

In this issue: • Rare is everywhere: meet Carol-Anne • Equity for Rare: Chief Executive's update • Join our call for action: fair healthcare for all • UN recognition for rare disease community • Rare Voices Australia: report launched • Cancer care must include rare diseases

Aug 29, 2019, 11:35 AM
Rare Disorders NZ: August update

In this issue: • Rare is everywhere: meet Natalie • Lisa Foster's first editorial • Meeting with the Minister of Health • Introducing our new Relationship Manager • Medicines access campaigns • Rare disease researchers and genetics • Rare Disorders NZ AGM