The New Zealand Organisation for Rare Disorders (NZORD) was established in September 2000, and changed its name to Rare Disorders NZ (RDNZ) in 2019.
RDNZ offers a central starting point for patients and families affected by rare disorders, and helps families, patients and healthcare providers find essential information and support groups.
RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.
RDNZ is a member of Rare Diseases International and the Asia Pacific Alliance of Rare Disease Organisations (APARDO).
The RDNZ logo features a kōtare, the New Zealand kingfisher. Kingfishers are found throughout New Zealand in a wide range of habitats and are common, but rarely seen compared to other birds. Māori admired kōtare for being like a watchful sentry. Our logo has a sense of action and uplifting movement which fits the continued aims of our organisation.
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder.
To see New Zealand become a country where people living with rare disorders are fully recognised and supported, with equitable access to health and social care.