RDNZ actively engages with rare disease issues by responding to calls for submissions.

 

Jul 5, 2018, 10:40 AM
Submission to Pharmac Consumer Voice

The patient voice should be included from the start to ensure equity for all people requiring pharmaceutical treatment.

May 17, 2018, 8:37 AM
Submission to Mental Health Enquiry

People with rare disorders are more likely to experience mental stress and depression.The stresses and mental hardships of living with a rare disorder were the focus of NZORD's submission to the Government's Mental Health Inquiry.