The work we do to improve healthcare and wellbeing for people and their whānau living with a rare disorder would not be possible without the support of our partners. Thank you! 

phil&teds Since 2019, our office space and its utilities have been generously provided to us free of charge by phil&teds, the Wellington-based, award-winning international baby gear company.
GoCoud logo Our website is made possible with the pro bono services of Go Cloud Systems. From advising on website management, to the creation of a new website, the team at GoCloud has improved the way we use technology.

Funding partners

We greatly appreciate the support from our funding partners who enable us to carry out our work advocating for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Ministry of Health IHC One Foundation JR McKenzie
Lottery Grants Foundation North Aotearoa Gaming Trust The Lion Foundation
Pelorus Trust Trust House Foundation Grassroots Trust Central Kiwi Gaming Foundation
Four Winds Foundations  Pub Charity    

Our Partners in Aotearoa New Zealand

We work with a number of partner organisations that can support people living with a rare disorder in New Zealand.

We connect rare disorder patients and their families to our partner organisations and help to share relevant information from our partners to the rare disorder community. 


Parent to ParentChrons and ColitisNeurological AllianceMedics For RareAsthma and Respiratory Disabled Persons AssemblyCarers NZPerinatal AnxietyNZMAThe Royal NZ College of GPsLung FoundationInclusive Aotearoa

International partners

Rare Disease International


Rare Voices Aotearoa




World Patient Alliance

Genetic Alliance 

CORD  The Paediatric Society of NZ

Letters of Endorsement

Royal New Zealand College of GPs (endorsement letter)

NZ Medical Association (endorsement letter)

PHARMAC Letter of support for Rare Disorders NZ

The Paediatric Society of New Zealand (endorsement letter)