I'm one of approx 1:3,000 worldwide people including New Zealanders with this disease, HHT, that has no cure. A lot of sufferers are misdiagnosed and/or don't know they have it, due to symptoms varying and being complex in nature.
I have had CRPS for almost 10 years now. C.R.P.S or CRPS is a neurological chronic pain condition. Our injuries heal, but our brain keeps sending out constant pain signals, our central nervous system malfunctions and even our autonomic system begins to misfire.