Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.

Aug 6, 2018, 4:19 PM
Elizabeth's story

I've asked myself since if it would it have made any difference all those years ago if I had known?

Jun 21, 2018, 4:22 PM
Olivia's story

Not having a diagnosis means that Olivia is not put in a box and her possibilities are endless.

Jun 12, 2018, 4:27 PM
Samantha's story

It’s not your situation that determines your mind, but the way that your mind determines your situation.

Jun 6, 2018, 11:58 AM
Luca's story

It's so hard to believe now how small he was and what he's been through.

Jun 6, 2018, 11:44 AM
Adam's story

It is very scary and at times difficult trying to navigate the system.

May 10, 2018, 12:01 PM
Allyson's story

I want things to be so much better than they were when I was diagnosed.

May 3, 2018, 12:11 PM
Jessica's story

I wasn’t disappointed, I was lost and had no idea what all this meant.

May 3, 2018, 12:04 PM
Doug's story

I grew up a normal kid so it is very frustrating for me now.

May 1, 2018, 5:03 PM
Heath's story

From four weeks old we begged for help with Heath.

Apr 19, 2018, 12:15 PM
William's story

William is my superhero - 11p14.3 or not he’s a true blessing.