Stories project
Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.
Jun 6, 2018, 11:58 AM
Luca's story
It's so hard to believe now how small he was and what he's been through.
Jun 6, 2018, 11:44 AM
Adam's story
It is very scary and at times difficult trying to navigate the system.
May 10, 2018, 12:01 PM
Allyson's story
I want things to be so much better than they were when I was diagnosed.
May 3, 2018, 12:11 PM
Jessica's story
I wasn’t disappointed, I was lost and had no idea what all this meant.
Apr 19, 2018, 12:15 PM
William's story
William is my superhero - 11p14.3 or not he’s a true blessing.
