Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.
May 3, 2018, 12:11 PM
I wasn’t disappointed, I was lost and had no idea what all this meant.
May 3, 2018, 12:04 PM
I grew up a normal kid so it is very frustrating for me now.
May 1, 2018, 5:03 PM
From four weeks old we begged for help with Heath.
Apr 19, 2018, 12:15 PM
William is my superhero - 11p14.3 or not he’s a true blessing.
Feb 28, 2018, 12:17 PM
Almost every day Gabrielle amazes us with what she can do.