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Rare Disorders Month
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Rare Disorders Month
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Parent & Caregiver Guide launch
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Rare Disorders Month
Donate to RDNZ
Find a support group
Rare Disorders Month
Why #GlowUpShowUp for rare
Parent & Caregiver Guide launch
Paintvine
Rare Beer Challenge 2023
Get involved
Community events around the motu
Media coverage
Social media campaign
Tattoo campaign
Campaign Assets - quick links
Donate
Patient support
Find a support group
Setting up a support group
Patient resources
COVID-19 vaccine information
Parent & Caregiver Guide
About rare disorders
What is a rare disorder?
Facts and figures
Voice of Rare Disorders White Paper 2022
Stories project
Clinical resources
About RDNZ
What we do
Rare disorder collective
News
Partners and Supporters
Round Table of Companies
Our People
Submissions
Newsletters
Events
Get involved
Fair for Rare NZ
Donate
Share your story
Contact your MP
Contact us
Find a support group
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Patient support
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Search for support groups using disorder names or conditions.
22q
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ALD Foundation Trust
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Leukodystrophy Resource and Research Organisation Inc.
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Alpha-1 Association NN
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The Angelman Network
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Lysosomal Diseases New Zealand
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Fabry Disease New Zealand
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Fabry Australia
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Gaucher Association of Australia & New Zealand Inc
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New Zealand Pompe Network
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Find a support group
Setting up a support group
Patient resources
COVID-19 vaccine information
Parent & Caregiver Guide