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Patient resources
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About rare disorders
What is a rare disorder?
Facts and figures
Voice of Rare Disorders White Paper 2022
Stories project
Rare Disease Day
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About RDNZ
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Patient support
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Search for support groups using disorder names or conditions.
Foetal Anti-Convulsant Syndrome NZ
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Fragile X New Zealand Trust
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Guillain Barre Syndrome support group
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Blood and Leukaemia
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Haemophilia Foundation of New Zealand
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HAE Australiasia LTD
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Homocystinuria (HCU)
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Huntington's Disease Association
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Immune Deficiency Foundation of New Zealand Inc. (IDFNZ)
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IIH Brains Trust
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