What is a rare disorder?
In New Zealand there is no official definition of what is rare.
In New Zealand there is no official definition of what is rare.
There are more than 6,000 different types of rare disorders, with more being discovered each day.
The Voice of Rare Disorders survey was conducted in November 2021 by Rare Disorders NZ to fill a significant data-gap in the New Zealand health system, due to the lack of official data collected on rare disorders.
Meet some of the 300,000 people living with a rare disorder in New Zealand.
As a healthcare provider, you may be the first point of contact for someone at the beginning of their life-changing journey of living with a rare disorder.