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In New Zealand there is no official definition of what is rare.
There are more than 7,000 different types of rare disorders, with more being discovered each day.
People living with a rare disorder are estimated to make up 6% of New Zealand’s population, yet this large community experiences substantial unmet need and inequitable access to healthcare.
Meet some of the 300,000 people living with a rare disorder in New Zealand.
As a healthcare provider, you may be the first point of contact for someone at the beginning of their life-changing journey of living with a rare disorder.