What is a rare disorder?
In New Zealand there is no official definition of what is rare.
About rare disorders
In this section
Facts and figures
There are more than 6,000 different types of rare disorders, with more being discovered each day.
Voice of Rare Disorders White Paper 2022
The Voice of Rare Disorders survey was conducted in November 2021 by Rare Disorders NZ to fill a significant data-gap in the New Zealand health system, due to the lack of official data collected on rare disorders.
Stories project
Meet some of the 300,000 people living with a rare disorder in New Zealand.
Clinical resources
As a healthcare provider, you may be the first point of contact for someone at the beginning of their life-changing journey of living with a rare disorder.