In this section

Facts and figures

There are more than 6,000 different types of rare disorders, with more being discovered each day.

Voice of Rare Disorders White Paper 2022

The Voice of Rare Disorders survey was conducted in November 2021 by Rare Disorders NZ to fill a significant data-gap in the New Zealand health system, due to the lack of official data collected on rare disorders.

Stories project

Meet some of the 300,000 people living with a rare disorder in New Zealand.

Rare Disease Day

Rare Disease Day is day of global solidarity, marked each year around the world on the last day of February (the rarest day of the year) to raise awareness and to advocate for equity for rare disorders.

Clinical resources

As a healthcare provider, you may be the first point of contact for someone at the beginning of their life-changing journey of living with a rare disorder.