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In New Zealand there is no official definition of what is rare.
There are more than 7,000 different types of rare disorders, with more being discovered each day.
What does it mean to live with a rare disorder in New Zealand in 2023 and what barriers do people continue to face within the health and social systems to access the care they need? Help us build this picture by taking our survey.
People living with a rare disorder are estimated to make up 6% of New Zealand’s population, yet this large community experiences substantial unmet need and inequitable access to healthcare.
Meet some of the 300,000 people living with a rare disorder in New Zealand.
As a healthcare provider, you may be the first point of contact for someone at the beginning of their life-changing journey of living with a rare disorder.