What is a rare disorder?
In New Zealand there is no official definition of what is rare.
About rare disorders
In this section
Facts and figures
There are more than 7,000 different types of rare disorders, with more being discovered each day.
Voice of Rare Disorders Survey 2023
What does it mean to live with a rare disorder in New Zealand in 2023 and what barriers do people continue to face within the health and social systems to access the care they need? Help us build this picture by taking our survey.
Rare disorders in New Zealand
People living with a rare disorder are estimated to make up 6% of New Zealand’s population, yet this large community experiences substantial unmet need and inequitable access to healthcare.
Stories project
Meet some of the 300,000 people living with a rare disorder in New Zealand.
Clinical resources
As a healthcare provider, you may be the first point of contact for someone at the beginning of their life-changing journey of living with a rare disorder.