Find a support group
Search for support groups using disorder names or conditions.
Patient support
In this section
Setting up a support group
A rare disorder support group is a gathering of interested people who come together to provide a support network.
Patient resources
Services and resources that may be helpful for people living with a rare disorder in New Zealand.
Parent & Caregiver Guide
Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New ZealandThis booklet has been created by Rare Disorders New Zealand to help parents and caregivers navigate the path in caring for a child with a rare disorder in New Zealand.
Financial assistance
If you have a rare disorder or you are caring for a person with a rare disorder, you may be entitled to financial assistance from the government.
COVID-19 vaccine information
The Rare Disorders NZ team is here to support the rare disorder community during the current COVID-19 crisis.