In this section

Find a support group

This is a directory of the support group collective that works with Rare Disorders New Zealand.

Setting up a support group

A rare disorder support group is a gathering of interested people who come together to provide a support network.

Patient resources

Services and resources that may be helpful for people living with a rare disorder in New Zealand.

Parent & Caregiver Guide

This booklet has been created by Rare Disorders New Zealand to help parents and caregivers navigate the path in caring for a child with a rare disorder in New Zealand.

Transition to independent living

When rangatahi have reached a stage where they need to transition to independent living it can be an anxious time for all involved.

Financial assistance

If you have a rare disorder or you are caring for a person with a rare disorder, you may be entitled to financial assistance from the government.

Advocating for yourself and others

Self–AdvocacyYou may want to self-advocate when speaking with doctors and health care professionals, in hospitals, at schools, with government bodies, and in the community.