In this section

Setting up a support group

A rare disorder support group is a gathering of interested people who come together to provide a support network.

Patient resources

Services and resources that may be helpful for people living with a rare disorder in New Zealand.

COVID-19 vaccine information

The Rare Disorders NZ team is here to support the rare disorder community during the current COVID-19 crisis.

Parent & Caregiver Guide

Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New Zealand This booklet has been created by Rare Disorders New Zealand to help parents and caregivers navigate the path in caring for a child with a rare disorder in New Zealand.