Find a support group
This is a directory of the support group collective that works with Rare Disorders New Zealand.
Patient support
In this section
Setting up a support group
A rare disorder support group is a gathering of interested people who come together to provide a support network.
Patient resources
Services and resources that may be helpful for people living with a rare disorder in New Zealand.
Parent & Caregiver Guide
This booklet has been created by Rare Disorders New Zealand to help parents and caregivers navigate the path in caring for a child with a rare disorder in New Zealand.
Mental health and wellbeing support
Mental health support services in Aotearoa New Zealand.
Transition to independent living
When rangatahi have reached a stage where they need to transition to independent living it can be an anxious time for all involved.
Financial assistance
If you have a rare disorder or you are caring for a person with a rare disorder, you may be entitled to financial assistance from the government.
Advocating for yourself and others
Self–AdvocacyYou may want to self-advocate when speaking with doctors and health care professionals, in hospitals, at schools, with government bodies, and in the community.