Find a support group
This is a directory of the support group collective that works with Rare Disorders New Zealand.
Patient support
In this section
Setting up a support group
A rare disorder support group is a gathering of interested people who come together to provide a support network.
Patient resources
Services and resources that may be helpful for people living with a rare disorder in New Zealand.
Parent & Caregiver Guide
Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New ZealandThis booklet has been created by Rare Disorders New Zealand to help parents and caregivers navigate the path in caring for a child with a rare disorder in New Zealand.
Mental health and wellbeing support
Emergency and urgent helpIf you or someone you care for are in immediate physical danger, call 111 for immediate help.
Financial assistance
If you have a rare disorder or you are caring for a person with a rare disorder, you may be entitled to financial assistance from the government.