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There are more than 6,000 different types of rare disorders, with more being discovered each day.
There are an estimated 300 million people living with a rare disorder worldwide.
72% of rare diseases are genetic in origin and thus are present throughout a person's life even if the symptoms do not immediately appear.
Approximately 50% of the people affected by rare diseases are children.
95% of rare diseases have no approved drug treatments.
Approximately 50% of rare diseases do not have a disease specific foundation supporting or researching their rare disease.
Source: Rare Diseases International
Find the latest data on living with a rare disorder in Aotearoa New Zealand here.