Find a group

Search our support groups to find and connect with others.

Hear our stories

Learn how rare disorders have impacted people's lives.

Get involved

Donate, volunteer, or join one of our campaigns.

RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder.

Our vision

To see New Zealand become a country where people living with rare disorders are fully recognised and supported, with equitable access to health and social care.



Card image cap


Kua nekeneke atu e mātou ki te tari hou! RDNZ has moved into a new office!
Read more
Card image cap


Making the invisible 300,000 Kiwis count 
Read more
Card image cap


RDNZ presents to MSD Health and Disability Advisors about rare disorders
Read more