Find a group

Search our support groups to find and connect with others.

Hear our stories

Learn how rare disorders have impacted people's lives.

Get involved

Donate, volunteer, or join one of our campaigns.

RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder.

Our vision

To see New Zealand become a country where people living with rare disorders are fully recognised and supported, with equitable access to health and social care.

 

Latest

Card image cap

02/06/2023

Treatment for severe rare disorder finally available, but screening is not – Rare Disorders NZ wants answers from Minister
Read more
Card image cap

10/05/2023

‘Blind spot’ in health system due to lack of data on rare disorders
Read more
Card image cap

17/04/2023

New global nursing network aims to improve health outcomes for rare patients
Read more