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RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

To champion and amplify the collective voice of New Zealanders with rare disorders, advocating for access to world class and world leading health, disability, education and other services.

Our vision

Best possible health and wellbeing for people and whānau living with rare disorders in New Zealand/Aotearoa



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Patient advocates meet with Labour to discuss medicine access
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Briefing on medicine access issues for rare sent to new Pharmac Chair
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Rare disorder patients desperate to know if their medicines will be funded in new Pharmac budget allocation
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