Find a group

Search our support groups to find and connect with others.

Hear our stories

Learn how rare disorders have impacted people's lives.

Get involved

Donate, volunteer, or join one of our campaigns.

RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

To champion and amplify the collective voice of New Zealanders with rare disorders, advocating for access to world class and world leading health, disability, education and other services.

Our vision

Best possible health and wellbeing for people and whānau living with rare disorders in New Zealand/Aotearoa

 

Latest

Card image cap

25/07/2024

Rare disorder community celebrates Aotearoa’s first Rare Disorders Strategy
Read more
Card image cap

22/07/2024

RDNZ invited to release of Letter of Expectation to Pharmac
Read more
Card image cap

21/07/2024

Patient advocates meet with Labour to discuss medicine access
Read more