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RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.
Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder.
Our vision
To see New Zealand become a country where people living with rare disorders are fully recognised and supported, with equitable access to health and social care.
Latest
02/06/2023
Treatment for severe rare disorder finally available, but screening is not – Rare Disorders NZ wants answers from Minister
10/05/2023
‘Blind spot’ in health system due to lack of data on rare disorders
17/04/2023