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RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder.

Our vision

To see New Zealand become a country where people living with rare disorders are fully recognised and supported, with equitable access to health and social care.



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RDNZ new partner charity of One Percent Collective
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After years of tireless advocacy, Rare Disorders NZ overjoyed Minister instructs development of Rare Disorder Strategy
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Pharmac funding allocation falls far short of what is needed for rare disorders
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