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RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder.

Our vision

To see New Zealand become a country where people living with rare disorders are fully recognised and supported, with equitable access to health and social care.

 

Latest

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28/09/2022

Pharmac’s Spinraza announcement welcome but long overdue
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16/08/2022

Pharmac supports Trikafta being funded for eligible patients 6 years and older
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16/07/2022

RDNZ new partner charity of One Percent Collective
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