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RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

To champion and amplify the collective voice of New Zealanders with rare disorders, advocating for access to world class and world leading health, disability, education and other services.

Our vision

Best possible health and wellbeing for people and whānau living with rare disorders in New Zealand/Aotearoa



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New changes to support funding further deprive disabled Kiwis of choices and opportunities, says Rare Disorders NZ
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Pharmac-initiated lengthy review a waste of valuable time and resources, says Rare Disorders NZ
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Rare Beer Challenge 2024
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