Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder

 

Latest news

Dec 10, 2019, 10:47 AM
Rare Beer brewers needed

As part of Rare Disease Day 2020, RDNZ has teamed up with Fortune Favours craft beer brewers to create a Rare Beer.

Nov 18, 2019, 1:02 PM
Let your voice count to make a difference: NZ Voice of Rare Disorders survey

This survey is open to anyone who is living with a rare disorder in NZ, as well as their family members and carers.

Nov 13, 2019, 10:07 AM
Folic acid fortification of flour

Rare Disorders NZ supports mandatory fortification of bread with folic acid to reduce neural tube defects.

Nov 5, 2019, 11:06 AM
APARDO Regional Collaboration for Global Change Summit

Lisa Foster was an invited speaker at the Asia Pacific Alliance of Rare Disease Organisations (APARDO) summit in Taiwan last month.

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