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RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

To champion and amplify the collective voice of New Zealanders with rare disorders, advocating for access to world class and world leading health, disability, education and other services.

Our vision

Best possible health and wellbeing for people and whānau living with rare disorders in New Zealand/Aotearoa



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Rare Disorders NZ wants new Minister for Pharmac to act swiftly to remove Pharmac Chair
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My Life Matters – putting medicine access on the election agenda
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Rare Disorders NZ appalled by attitude within Pharmac; calls for Chair’s removal 
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