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RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder.

Our vision

To see New Zealand become a country where people living with rare disorders are fully recognised and supported, with equitable access to health and social care.



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RDNZ makes submission on Precision Health consultation
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New Zealanders affected by rare disorders share their struggles with education system at international UN-agency meeting
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Reducing access to cancer medicine for children to improve equity unacceptable, says Rare Disorders NZ
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