Newsletters
Bi-monthly news and views from the connector hub and collective voice of rare disorders in New Zealand.
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Rare Disorders NZ: October update
In this issue: • Rare is everywhere: meet Allyson • Fair for Rare NZ: Chief Executive's update • Fair for Rare NZ campaign • Rare disorder webinars • Human Rights Commission case against PHARMAC • Rare Disease Day 2021
Rare Disorders NZ: August update
In this issue: • Rare is everywhere: meet Roger • Fair for Rare NZ: Chief Executive's update • Fair for Rare NZ campaign • Medicines NZ Parliamentary Dinner • Rare diseases - is something so common really so rare? • Endorsement from the Royal NZ College of GPs
Rare Disorders NZ: June update
In this issue: • Rare is everywhere: meet Lizzie • Fair for Rare NZ: Chief Executive's update • Parliamentary Petition • MP Liaison programme • Election Manifesto • Have your say: a new generation medicines policy • International connections
Rare Disorders NZ: April update
In this issue: • Rare is everywhere: meet Susan • Chief Executive's update • COVID-19 - Resilience webinar and other resources • Fair for Rare NZ campaign launch • Fair for Rare in the media • NZ Voice of Rare Disorders White Paper • International connections strengthened
Rare Disorders NZ: February update
In this issue: • Rare is everywhere: meet Shirley • Chief Executive's update • Fair for Rare NZ campaign launch • Help us help those with a rare disorder • Rare Beer - Cheers for Rare!
Rare Disorders NZ: December update
In this issue: • Rare is everywhere: meet Adam • Fair for Rare: Chief Executive's update • Rare Disease Day 2020: Launch of Fair for Rare campaign • National commits to ring-fenced fund for rare disorders • APARDO Regional Collaboration for Global Change Summit • Folic acid fortification
Rare Disorders NZ: October update
In this issue: • Rare is everywhere: meet Carol-Anne • Equity for Rare: Chief Executive's update • Join our call for action: fair healthcare for all • UN recognition for rare disease community • Rare Voices Australia: report launched • Cancer care must include rare diseases
Rare Disorders NZ: August update
In this issue: • Rare is everywhere: meet Natalie • Lisa Foster's first editorial • Meeting with the Minister of Health • Introducing our new Relationship Manager • Medicines access campaigns • Rare disease researchers and genetics • Rare Disorders NZ AGM