Newsletters
Bi-monthly news and views from the connector hub and collective voice of rare disorders in New Zealand.
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Rare Disorders NZ: August update
In this issue: • Rare is everywhere: meet Prerna • Fair for Rare NZ: Chief Executive's update • PHARMAC Review panel presentation • Governor-General patronage • Disability Rights Commissioner meeting • Disorders not so rare: awareness article • Government to mandate folic acid in flour • Ministry of Health meeting: raising awareness of rare disorders
Rare Disorders NZ: June update
In this issue: • Rare is everywhere: meet Susannah • Fair for Rare NZ: Chief Executive's update • Letter to the NZ Ambassador to the UN • Patient Voice Aotearoa protest • PHARMAC Review: submission template • GP conference update • Tattoo art auction • Fair for Rare NZ campaign
Rare Disorders NZ: April update
In this issue: • Rare is everywhere: meet Flynn • Fair for Rare NZ: Chief Executive's update • Petition handover at Parliament • Meeting with the Minister of Health • Rare disorders in the media • NZ's lack of rare disorder policy highlighted at UN meeting • Fair for Rare NZ campaign next phase • Patient Voice Aotearoa petition update
Rare Disorders NZ: February update
In this issue: • Rare is everywhere: meet Carsen • Fair for Rare NZ: Chief Executive's update • Rare Disease Day 2021 • Fair for Rare NZ campaign • Petition handover at Parliament • Newtown Festival - volunteers needed • COVID-19 vaccinations priority list • Sick leave bill submission
Rare Disorders NZ: December update
In this issue: • Rare is everywhere: meet Chris • Fair for Rare NZ: Chief Executive's update • Fair for Rare NZ campaign: Petition handover • Briefing to Minister of Health • Sick Leave Amendment Bill - make a submission • Webinars for the rare disorder community • Promoting awareness of rare disorders • Share your story for Rare Disease Day
Rare Disorders NZ: October update
In this issue: • Rare is everywhere: meet Allyson • Fair for Rare NZ: Chief Executive's update • Fair for Rare NZ campaign • Rare disorder webinars • Human Rights Commission case against PHARMAC • Rare Disease Day 2021
Rare Disorders NZ: August update
In this issue: • Rare is everywhere: meet Roger • Fair for Rare NZ: Chief Executive's update • Fair for Rare NZ campaign • Medicines NZ Parliamentary Dinner • Rare diseases - is something so common really so rare? • Endorsement from the Royal NZ College of GPs
Rare Disorders NZ: June update
In this issue: • Rare is everywhere: meet Lizzie • Fair for Rare NZ: Chief Executive's update • Parliamentary Petition • MP Liaison programme • Election Manifesto • Have your say: a new generation medicines policy • International connections
Rare Disorders NZ: April update
In this issue: • Rare is everywhere: meet Susan • Chief Executive's update • COVID-19 - Resilience webinar and other resources • Fair for Rare NZ campaign launch • Fair for Rare in the media • NZ Voice of Rare Disorders White Paper • International connections strengthened
Rare Disorders NZ: February update
In this issue: • Rare is everywhere: meet Shirley • Chief Executive's update • Fair for Rare NZ campaign launch • Help us help those with a rare disorder • Rare Beer - Cheers for Rare!