News
The latest updates from RDNZ and the rare disorder community.
Folic acid fortification
A new report, commissioned by the Ministry of Health, has concluded that the benefits of mandatory fortification of bread with folic acid outweigh any possible adverse effects.
Unified voice for carers
NZORD’s Relationship Manager, Lisa Crawford, attended the Carers Alliance meeting on 26 July, an alliance of 45 national not-for-profit organisations.
Meet the Kiwi DNA detective helping kids across the world
NZORD board member Professor Stephen Robertson is a world-renowned paediatric geneticist.
Running for rare disorders
A science student is running her first marathon to raise money for NZORD and the rare disorder community in New Zealand.
NZORD funding update
We have signed a new three-year contract with the Ministry of Health, with reduced funding each year.