The latest updates from RDNZ and the rare disorder community. 

Oct 1, 2018, 11:25 AM
Applications for medicines for rare disorders

PHARMAC has received 13 supplier funding applications for medicines for rare disorders.

Sep 11, 2018, 11:27 AM
PHARMAC proposal open for feedback

PHARMAC is proposing to change how three hospital medicines are managed within the Pharmaceutical Schedule.

Sep 3, 2018, 11:33 AM
Rare disease researchers awarded

NZORD recognised two rare disease researchers at the Queenstown Research Week Satellite on Rare Brain Diseases meeting last week.

Sep 1, 2018, 9:57 AM
Research on Parkinson’s disease

Research on a rare form of Parkinson’s disease may have wider benefits for future cancer treatments.

Aug 13, 2018, 11:37 AM
Folic acid fortification

A new report, commissioned by the Ministry of Health, has concluded that the benefits of mandatory fortification of bread with folic acid outweigh any possible adverse effects.

Aug 7, 2018, 11:42 AM
Unified voice for carers

NZORD’s Relationship Manager, Lisa Crawford, attended the Carers Alliance meeting on 26 July, an alliance of 45 national not-for-profit organisations.

Jul 23, 2018, 11:44 AM
Meet the Kiwi DNA detective helping kids across the world

NZORD board member Professor Stephen Robertson is a world-renowned paediatric geneticist.

Jul 11, 2018, 11:47 AM
Running for rare disorders

A science student is running her first marathon to raise money for NZORD and the rare disorder community in New Zealand.

Jul 9, 2018, 11:49 AM
NZORD funding update

We have signed a new three-year contract with the Ministry of Health, with reduced funding each year.