• 27

    February

    An Almighty Yes by Emma Lange

    • 09:00 PM - 10:00 PM
    This bittersweet one-hour comedy presented by the NZ Fringe Festival features Emma performing as herself as well as a range of outrageous characters as she tells the story of her brain tumour diagnosis. The performance on Wednesday 28 February is dedicated to raising awareness of Rare Disease Day and Rare Disorders Month
  • 28

    February

    Connecting the Dots - Research and Specialist Event

    • 11:00 AM - 01:00 PM
    *Invite only* We are pleased to be co-hosting a networking event with the Victoria University of Wellington for rare disorder researchers and specialists in New Zealand.
  • 28

    February

    Launch of White Paper

    • 05:30 PM - 07:30 PM
    *Invite only* Rare Disorders NZ will be launching the White Paper based on the Voice of Rare Disorders Survey 2023
  • 29

    February

    Support Group Lead morning tea

    • 10:00 AM - 12:00 PM
    *Invite only* To mark Rare Disease Day we will bringing support group leads together from around the country to celebrate this special day and acknowledge the invaluable work they do to support their respective group members.
  • 1

    March

    Essay writing competition

    • 12:00 AM - 12:00 AM
    Rare Disorders NZ is inviting health professional students to take part in a a short essay writing competition during Rare Disorders Month in March to encourage students to engage with and learn about rare disorders.
  • 3

    March

    RDNZ @ Newtown Festival

    • 10:00 AM - 06:00 PM
    We'll be Glowing Up and Showing Up at New Zealand's biggest street party - the Newtown Festival in Wellington!
  • 8

    March

    Rare Beer 2024

    • 03:00 PM - 12:00 AM
    Fortune Favours will once again be hosting Rare Beer in Wellington and Auckland. Save the date for the evening of Friday 8 March! More to come...
  • 17

    March

    Timaru Community Get-together

    • 10:00 AM - 12:00 PM
    Community get-together at Cplay (Caroline Bay Playground). There are rooms available also if wet.
  • 30

    March

    A Rare Kind of Walk

    • 01:00 PM - 06:00 PM
    James McGoram, Rare Disorders NZ's Board Chair, is raising money for Rare Disorders NZ by walking around Maungawhau (Mt Eden) - again, and again, and again! Join James - by walking a few loops of the mountain with him on the day, by donating to his Givealittle campaign, or by sharing this page with your friends and loved ones.
  • 31

    March

    Rolleston Community Get-together

    • 01:00 PM - 03:00 PM
    Community get-together at Rolleston Library (Te Ara Ātea) Tennyson Street, venue room TBC