• 08:00 AM - 04:30 PM

*INVITE ONLY*

We are holding our biennial Support Group Lead Hui in Wellington in August. We look forward to welcoming you, sharing ideas and supporting your advocacy journey.

When: 1 & 2 August 2024

Where: Brentwood Hotel, 16 Kemp St, Kilbirnie, Wellington 

Agenda:

Thursday 1st August: Dinner, arrive 6.30pm for 7pm sit down.

Friday 2nd August

08:00

Arrive: tea, coffee, light breakfast

09:00

Start

09:15

Te Whatu Ora update on the implementation of the rare disorder strategy + Q&A

10:00

RDNZ work plan 2024/25, Rare Disorders Month 2025 – RDNZ 25th anniversary

10:30

Morning tea

11:00

Writing your media messaging

11:30

Greg Ward- PR tips and Interview Skills

13:00

Lunch

14:00

Umbrella – Compassion Fatigue, love yourself enough to set boundaries!

15:00

Afternoon tea

15:30

Q & A panel RDNZ Board: Questions/feedback

4:30

End

 

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