Ministry of Health's plan to develop Rare Disorders Strategy
'A strategy for rare disorders needs to be developed', Minister of Health Andrew Little, June 2021.
Rare Disorders NZ has been having ongoing discussions with Manatū Hauora - the Ministry of Health, on the development of the national rare disorders strategy following the Government's commitment to implement this recommendation from the independent Pharmac Review.
To date the Ministry of Health have developed an outline plan on the scope, engagement and outcomes for the national strategy. The development of the strategy is expected to be completed by the end of 2023.
View the plan to develop the rare disorders strategy here.