Aotearoa heard our call to Glow Up and Show Up for Rare during the month of March, and what a month it was! The Glow up and Show up for Rare campaign provided an opportunity for the 300,000 strong community of rare patients, as well as friends and whānau to rally together and call for urgency in the health reform that has been promised.
From Invercargill to Warkworth, events were held in local communities all around the motu. It was heartening to see the wider community show their support for rare, with kindergartens, schools, workplaces and community groups all getting behind the cause hosting morning teas, organising fundraisers, setting up displays and raising awareness through newsletters and social media.
The sustained media campaign also enabled the rare disorder community to be heard far and wide, with coverage across major broadcast, print, and online news media - reaching hundreds of thousands of New Zealanders. And a social media campaign using temporary tattoos as a way to show support made it possible for anybody anywhere in the country to get involved.
We are already looking forward to planning our next Rare Disorders Month campaign and welcome feedback and suggestions to make an even bigger and better impact next year!