• All Day


Rare Disorders NZ will be launching the White Paper based on the Voice of Rare Disorders Survey 2023 - the largest-ever survey of patient-reported outcomes for people with rare disorders in New Zealand.

Keynote speaker - Dr. Gareth Baynam, clincial genetist and 

Thank you to Medicines NZ, HealthiNZ, Alexion, BioMarin for supporting the production and launch of this white paper.  


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