Launch of White Paper

• All Day

*INVITE ONLY*

Rare Disorders NZ will be launching the White Paper based on the Voice of Rare Disorders Survey 2023 - the largest-ever survey of patient-reported outcomes for people with rare disorders in New Zealand.

Keynote speaker - Dr. Gareth Baynam, clincial genetist and Medical Director of the Rare Care Centre, Clinical Centre of Expertise for Rare and Undiagnosed Diseases in Western Australia.

Where: Grand Hall, Parliament

When: 28 February 2024, 5:30 - 7:30 PM

Thank you to Medicines NZ, HealthiNZ, Alexion, BioMarin for supporting the production and launch of this white paper.  

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