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Voice of Rare Disorders White Paper 2022
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Patient support
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Search for support groups using disorder names or conditions.
Charcot Marie Tooth support group
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Fanconi Anaemia Support Australasia
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Idiopathic Hypersomnia
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Pitt-Hopkins Syndrome NZ & Oz
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Usher Kids
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FOXG1
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CDH Australia
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The Duncan Foundation
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KIWI CRPS
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Complex Regional Pain Syndrome (CRPS) NZ & Aus
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