MPs are OUR local representatives, and are obliged to meet with their constituents and listen to the issues that are most important to them.

RDNZ has created the following resources to help you meet with your MP to share your story and explain why the Government must commit to the development of a National Rare Disorder Framework:

Find your member of Parliament (MP)

Voice of Rare Disorders White Paper 2022: based on the results of our 2021 survey

MP meeting letter template

Key messages from the campaign

Fair for Rare NZ campaign booklet

White Paper one-page summary

Letter to Prime Minister - template

Once the meeting has taken place please inform RDNZ so we can follow up with the MP to provide further information on the campaign and ask what their party will do for this community.

Take a photo with the MP if possible, ideally holding the Fair for Rare NZ booklet, and send to RDNZ for use on social media. 

If you need any further information or support, please email Kim or call 04 385 1119.

In this section

MP meetings

The RDNZ team and many people living with a rare disorder have met their local MP to share their story and explain why the Government must commit to the development of a National Rare Disorder Framework.