Improving engagement with Māori living with a rare disorder
As part of the development of New Zealand’s first Rare Disorders Strategy, Rare Disorders NZ have been having regular, weekly hui with Te Aka Whai Ora to plan how we will engage with whānau Māori to ensure that the voices of Māori living with a rare disorder are reflected in the Rare Disorders Strategy plan.
From these meetings we have a joint goal to identify at least 50 whānau Māori who live with a rare disorder before the team at Te Aka Whai Ora go out into the communities in September to listen to the expert lived experiences.
This partnership with Te Aka Whai Ora has been exemplary for the way in which engagement has been prioritised and we have confidence that these kōrero will be both ongoing and of benefit to all people living with rare disorders.
If this is a kaupapa which you want to be involved in, don’t hesitate to email Julian, our kaiāwhina Māori, enquiries@raredisorders.org.nz
Mā pango, mā whero ka oti te mahi