• All Day


We will be marking Rare Disease Day 2023 by launching our new parent and caregiver guide, Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New Zealand

This guide has been developed by Rare Disorders NZ to help parents and caregivers navigate the path in caring for a child with a rare disorder in Aotearoa New Zealand.

Rare Disorders NZ’s patron Her Excellency, The Right Honourable Dame Cindy Kiro, will be hosting the event at Government House, and we look forward to celebrating this occasion with invited families and members of the rare disorder community.

The guide will be available to download for free from our website following the launch.

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