Media coverage
28 February 2023
TVNZ Breakfast
Today FM, James McGoram on Lloyd Burr Drive programme
1 March 2023
Today FM, Diagnosis challenges for rare disorder patients
2 March 2023
NZ Herald, Rare disorders booklet will help ease stress for parents
Te Ao Maori News, Country's first rare disorders month begins
NZ Herald - Kahu, Rare Disorders NZ publishes guide for parents and caregivers
10 March 2023
One News, Rare Beer Challenge a chance to say cheers for charity
11 March 2023
One News, Kiwis with rare diseases not reflected in statistics - charity
RNZ, 'It can take 10 years to get a diagnosis' - Kiwis with rare diseases not reflected in statistics