We are the advocacy and support body for the collective rare disorder community in Aotearoa. We rely on donations to continue to hold the Government to account on their promise to develop a national rare disorder strategy.

By donating this Rare Disorders Month, you’re helping to bring the rare community out of the darkness, and into the light.

Your donation will go towards running our enquiries line, providing connection, guidance, advice and resources for 140+ support groups and representing the rare community’s voice at the highest levels to improve healthcare and wellbeing for people and their whānau living with a rare disorder.

Ways to donate

To donate to Rare Disorders NZ visit our #GlowUpShowUp Givealittle page.

If you have been fundraising in support of Rare Disorders Month and unsure how best to get the funds to us you can contact for advice.

If you would like to become a regular donor to Rare Disorders NZ, you can do so through One Percent Collective.

For others ways to donate, visit our Donate page.

Thank you for your support.