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About rare disorders
What is a rare disorder?
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Voice of Rare Disorders White Paper 2022
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Patient support
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Search for support groups using disorder names or conditions.
ausEE Inc.
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Spina Bifida Association of New Zealand
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Te Whānau Kōtuku – Rare Disorders NZ Maori support group
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Myositis New Zealand
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Cheekee Hero
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New Zealand EoE Support
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Marfan New Zealand and related Connective Tissue Disorders
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Aortic Dissection Support Group
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Adenoid Cystic Carcinoma Support New Zealand
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