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  •   Rare Disorders Month
      Donate to RDNZ
      Find a support group
  • Rare Disorders Month Why #GlowUpShowUp for rare Parent & Caregiver Guide launch Paintvine Rare Beer Challenge 2023 Get involved Community events around the motu Media coverage Social media campaign Tattoo campaign Campaign Assets - quick links Donate
  • Patient support Find a support group Setting up a support group Patient resources COVID-19 vaccine information Parent & Caregiver Guide
  • About rare disorders What is a rare disorder? Facts and figures Voice of Rare Disorders White Paper 2022 Stories project Clinical resources
  • About RDNZ What we do Rare disorder collective News Partners and Supporters Round Table of Companies Our People Submissions Newsletters Events
  • Get involved Fair for Rare NZ Donate Share your story Contact your MP
  • Contact us

Campaign resources

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  4. Campaign resources

RDNZ has created resources to enable all people living with a rare disorder and their whānau to share their own story and support the Fair for Rare NZ campaign.

Voice of Rare Disorders White Paper 2022

Voice of Rare Disorders White Paper 2022 one-page 

Fair for Rare NZ campaign booklet 2022

Campaign endorsement document

RDNZ messaging guide 2022

APEC Action Plan on Rare Diseases

Fair for Rare NZ media tips

Flyer for GPs

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Contact Details

Rare Disorders NZ
PO Box 14-313
Kilbirnie
Wellington 6241

Phone: +64 4 385 1119

Registered Charity CC22512

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