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  • Fair for Rare NZ Parliamentary Petition Campaign resources Fair for Rare NZ campaign Meet your MP Political party positions Campaign endorsement
  • Patient support Find a support group Setting up a support group Patient resources COVID-19 vaccine information
  • About rare disorders What is a rare disorder? Facts and figures Voice of Rare Disorders White Paper 2022 Stories project Rare Disease Day Rare disorder databases Clinical resources
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  • Get involved Donate Share your story Contact your MP
  • Contact us

Campaign resources

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RDNZ has created resources to enable all people living with a rare disorder and their whānau to share their own story and support the Fair for Rare NZ campaign.

Voice of Rare Disorders White Paper 2022

Voice of Rare Disorders White Paper 2022 one-pager

Rare Disease Day 2022 media release template

Rare Disease Day 2022 blog post template

Fair for Rare NZ campaign booklet 2022

Campaign endorsement document

RDNZ messaging guide 2022

Key messages from the Fair for Rare campaign 2022 

APEC Action Plan on Rare Diseases

Fair for Rare NZ media tips

Royal New Zealand College of GPs (endorsement letter)

Social media tiles:

 

  • Parliamentary Petition
    • Health Select Committee
  • Campaign resources
  • Fair for Rare NZ campaign
  • Meet your MP
    • MP meetings 2020/21
  • Political party positions
  • Campaign endorsement
Contact Details

Rare Disorders NZ
PO Box 14-313
Kilbirnie
Wellington 6241

Phone: +64 4 385 1119

Registered Charity CC22512

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