In this section

Parliamentary Petition

Our petition calling for the development of a National Rare Disorder Framework was presented to Parliament in March 2021.

Campaign resources

RDNZ has created resources to enable all people living with a rare disorder and their whānau to share their own story and support the Fair for Rare NZ campaign.

Fair for Rare NZ campaign

“No country can claim to have achieved universal healthcare if it has not adequately and equitably met the needs of those with rare diseases.” Helen Clark, United Nations

Meet your MP

Here is a toolkit of resources to help supporters meet their local MP to share their stories.

Political party positions

RDNZ asked all the major political parties for their commitment to the strategic priorities within the National Rare Disorder Framework.

Campaign endorsement

This document outlines the campaign goals and has been endorsed by our collective and partners.