New Zealand's lack of rare disorder policy highlighted at UN meeting
RDNZ's CE Lisa Foster and Chair James McGoram had a fantastic opportunity to contribute to a Rare Disease International Policy Event on a UN Resolution for Rare Diseases last week.
They were inspired by the solidarity and support from standing with our global rare disease community as well as UN Permanent Missions for France, Spain, Qatar, Thailand and Brazil.
You can watch the video from James and Lisa that was played at this event to highlight the barriers faced by those with a rare disorder in New Zealand.
Post your comment
Comments
No one has commented on this page yet.
RSS feed for comments on this page | RSS feed for all comments