There is an opportunity to make submissions on the extension of the sick leave bill, a positive initiative for people living with a rare disorder and their carers. This will also be a chance to promote the need for a National Rare Disorder Framework. RDNZ will make a submission and we would like to encourage you and your support group to write your own.
RDNZ has created a submission template to make this process easy. The submission deadline is 28 January 2021. If you have any questions, please email Kim.