Rare Disease Day 2020
- 02:00 PM - 04:00 PM
This Rare Disease Day, Rare Disorders NZ is launching a Fair for Rare campaign at the Grand Hall, Parliament Buildings in Wellington.
There are over 7,000 rare disorders which collectively affect 300,000 New Zealanders – more than diabetes. Rare Disorders NZ, and the support groups we represent, are calling for acknowledgement of the common challenges faced by people living with a rare disease, along with a commitment to address these challenges through the development of a New Zealand National Rare Disorder Framework.
This event is part of Rare Disease Day 2020 and is also an opportunity to celebrate Rare Disorder NZ’s 20th birthday.