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  • Patient support Find a support group Setting up a support group Patient resources Parent & Caregiver Guide Financial assistance COVID-19 vaccine information
  • About rare disorders What is a rare disorder? Facts and figures Voice of Rare Disorders Survey 2023 Rare disorders in New Zealand Stories project Clinical resources
  • About RDNZ What we do Rare disorder collective News Partners and Supporters Round Table of Companies Our People Submissions Newsletters Events
  • Get involved Share our survey Rare Disease Day For schools Donate Bequests Share your story Contact your MP
  • Contact us

Campaign resources

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  3. Rare disorders in New Zealand
  4. Fair for Rare NZ
  5. Campaign resources

RDNZ has created resources to enable all people living with a rare disorder and their whānau to share their own story and support the Fair for Rare NZ campaign.

Voice of Rare Disorders White Paper 2022

Voice of Rare Disorders White Paper 2022 one-page 

Fair for Rare NZ campaign booklet 2022

Campaign endorsement document

RDNZ messaging guide 2022

APEC Action Plan on Rare Diseases

Fair for Rare NZ media tips

Flyer for GPs

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  • What is a rare disorder?
  • Facts and figures
  • Voice of Rare Disorders Survey 2023
  • Rare disorders in New Zealand
    • Rare Disorders Strategy progress
    • Where do the political parties stand in 2023?
    • BERL Rare Disorders Insights Report
    • Stakeholder Roundtable - Oct 2022
    • Voice of Rare Disorders White Paper 2022
    • Fair for Rare NZ
    • Our priorities
  • Stories project
  • Clinical resources
Contact Details

Rare Disorders NZ
PO Box 14-313
Kilbirnie
Wellington 6241

Phone: +64 4 385 1119

Registered Charity CC22512

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